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METADATA ADMINISTRATION FOR HEALTH CARE DATA AMALGAMATION

Abstract

The lack of fine-grained, cross-cohort query, and exploration interfaces and systems. Although many data repositories allow users to browse their content, few support fine-grained, cross-cohort query, and exploration at the study-subject level. To understand the challenge, we provide a review of the key concepts. In clinical research, investigators tend to work independently or in clusters of research teams. Raw data collected from experiments or clinical trials are usually stored electronically on a computer. However, to perform independent analysis or verify experimental results, sharing data between different researchers or teams is necessary. Furthermore, sharing and reuse of data is important for facilitating scientific discovery and enhancing research reproducibility.

Keywords
  • Metadata,
  • Health,,
  • Amalgamation
References
  • Tracy D Gunter and Nicolas P Terry. The emergence of national electronic health record architectures in the united states and australia: models, costs, and questions. Journal of medical Internet research, 7(1):e3, 2005.
  • What is human subjects research?. https://web.archive.org/web/ 20120207032034/http://www.utexas.edu/research/rsc/humansubjects/ whatis.html (visited: 2020-03-10).
  • Anca Vaduva and Thomas Vetterli. Metadata management for data warehous- ing: An overview. International Journal of Cooperative Information Systems, 10(03):273–298, 2001.
  • Francis S Collins and Lawrence A Tabak. Policy: Nih plans to enhance repro- ducibility. Nature, 505(7485):612–613, 2014.
  • Joseph S Ross and Harlan M Krumholz. Ushering in a new era of open science through data sharing: the wall must come down. Jama, 309(13):1355–1356, 2013.
  • Lisa M Federer, Ya-Ling Lu, Douglas J Joubert, Judith Welsh, and Barbara Brandys. Biomedical data sharing and reuse: Attitudes and practices of clinical and scientific research staff. PloS one, 10(6), 2015.
  • Mark D Wilkinson, Michel Dumontier, IJsbrand Jan Aalbersberg, Gabrielle Appleton, Myles Axton, Arie Baak, Niklas Blomberg, Jan-Willem Boiten, Luiz Bonino da Silva Santos, Philip E Bourne, et al. The fair guiding principles for scientific data management and stewardship. Scientific data, 3, 2016.
  • Nci genomic data commons, Jan 2020. https://gdc.cancer.gov/ (visited: 2020-01-30).
  • Natalya F Noy, Nigam H Shah, Patricia L Whetzel, Benjamin Dai, Michael Dorf, Nicholas Griffith, Clement Jonquet, Daniel L Rubin, Margaret-Anne Storey, Christopher G Chute, et al. Bioportal: ontologies and integrated data resources at the click of a mouse. Nucleic acids research, 37(suppl 2):W170–W173, 2009.
  • Russell A Poldrack and Krzysztof J Gorgolewski. Openfmri: Open sharing of task fmri data. NeuroImage, 144:259–261, 2017.
  • Dennis A Dean, Ary L Goldberger, Remo Mueller, Matthew Kim, Michael Rueschman, Daniel Mobley, Satya S Sahoo, Catherine P Jayapandian, Licong Cui, Michael G Morrical, et al. Scaling up scientific discovery in sleep medicine: the national sleep research resource. Sleep, 39(5):1151–1164, 2016.
  • Guo-Qiang Zhang, Licong Cui, Remo Mueller, Shiqiang Tao, Matthew Kim, Michael Rueschman, Sara Mariani, Daniel Mobley, and Susan Redline. The national sleep research resource: towards a sleep data commons. Journal of the American Medical Informatics Association, 25(10):1351–1358, 2018.
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How to Cite

MD. ANWAR. (2020). METADATA ADMINISTRATION FOR HEALTH CARE DATA AMALGAMATION. International Journal of Multidisciplinary Research and Studies, 3(01). Retrieved from https://ijmras.com/index.php/ijmras/article/view/620

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